This site has been created in memory of two little angels who were taken away from us way to soon. Sabrina and Alyssa shared an unmistakable passion for life, even though they both had mobility problems and pain due to (neurogeneration with Brain Iron Accumulation). They enjoyed life the best they could and always had smiles on their faces.
It is those smiles, that will be remembered by everyone who was lucky enough to have met them.
They are no longer with us, but in their memory we have created this website to spread the gift of their smiles, and to raise awareness around the world about this devastating disorder. Our hope is to raise enough money, so we can continue and expand research. Our ultimate goal is to find a cure in their honor, so that other kids and families do not have to suffer.
